Tenosynovial giant cell tumours (TGCTs) are a rare type of tumour that can only be found in the tissues that make up the joints. The most common treatment for TGCTs is surgery, which is also the most common treatment for TGCTs.
The vast majority of TGCTs are considered benign, which indicates that they do not progress to malignancy. On the other hand, TGCTs can have a significant negative impact on the way the affected joint functions, leading to discomfort, swelling, injury, and a loss of motion. TGCTs have been linked to disabilities in some patients.
The specific kind of operation that is performed to treat TGCT will change according on a number of different circumstances, including the following:
- The localization, nature, and extent of the malignancies in the body
- Detailed medical history, including any prior surgical procedures
- Consider a person’s age, general health, and preferences before making a decision.
- The possibility of the disease becoming more severe and the onset of impairment
- The prospect of undergoing surgery on one’s joints can be frightening, and even overwhelming. In this section, we will discuss some of the ways in which you might better prepare for your surgery.
Your healthcare team will be involved in the decision-making process regarding whether or not you should have surgery. It is imperative that you acquire as much information as possible on your diagnosis. When you meet with your healthcare providers, asking questions is one of the most effective methods to accomplish this goal. Because each instance of TGCT is unique, your healthcare team is the most reliable source of knowledge that you have access to.
The following is a list of questions that will assist you in getting started:
- How quickly can I expect to be back to normal after the procedure?
- What will the process of getting back on your feet look like? For instance, will you require the assistance of a physical therapist?
- What is the possibility that this will happen again?
- Make sure you are confidence in your surgeon’s expertise. Raise any issues that you may have with regard to the process. Inquire with the people who are treating you about what information they require from you.
- Get your financial house in order.
When surgery is necessary to treat TGCT, the financial burden of the procedure might add unneeded stress to the process. When it comes to your medical bills and any out-of-pocket expenses, you want to have all of the information before you need it. It is hoped that this would make you feel less stressed and give you more time and energy to concentrate on your rehabilitation.
Establish a method for filing all of the documentation that is associated with your condition. Maintaining order can make you feel less stressed and more in control of crucial dates and paperwork by keeping everything in its proper place.
Investigate your options for insurance protection. You should be aware of the out-of-pocket fees that you will be liable for paying as well as the date by which payment is due.
You should be aware of the costs of things like drugs, physical therapy, and follow-up sessions in addition to the expense of the treatment itself.
Inquire about the in-network and out-of-network providers that will be engaged in the treatment. For instance, you want an anesthesiologist who is part of your network of providers.
Make sure you’re mentally ready.
Having surgery can be a stressful experience emotionally. There is the anticipation leading up to the treatment itself, the difficulties of the recuperation phase, and the general unpredictability that comes along with having a condition such as TGCT. During this moment, you should not disregard the state of your mental and emotional health.
Think about enlisting the assistance of a patient navigator, who will be able to walk you through the entire procedure step by step.
Think about working with a mental health expert, such as a therapist or counsellor, who can assist you in finding healthy methods to cope with any worry or anxiety you are experiencing in the lead up to surgery as well as when you are recovering from it.
Talk to the people who are responsible for your healthcare. Keep in mind that they are available to handle any concerns you may have.
Make sure you give yourself some alone time every day. You could find that engaging in a particular activity, like meditation, is effective in lowering your levels of stress. You could also want to arrange some time for yourself to do something relaxing, such as read a book, watch a TV, or talk to a friend.
Prepare your support system
Your loved ones, in addition to being an important source of emotional support, can also be an important source of practical support with items such as:
Providing transportation to and from the hospital so that you can get your treatment done.
Taking care of errands around the house, such as watching children, watering plants, looking after pets, and collecting mail are examples of household duties.
As soon as you get back to your house, offering assistance with things like dinner preparation, doing errands, and other activities around the house.
Make sure you are in good physical shape.
Maintaining a healthy lifestyle is essential prior to and following surgical treatment. Eating a food that is both balanced and varied, maintaining an active lifestyle, and obtaining adequate amounts of sleep are all components of a healthy living. If your joints are impacted by TGCT, it is important that you discuss the best way to stay active with your healthcare team, as there are certain types of activity that may not be safe or suggested.
It is also essential to abstain from engaging in unhealthy behaviours such as drinking an excessive amount of alcohol and using cigarette products. If you smoke, you should stop because smoking can lead to lung issues and makes it more difficult to recover following surgery and anaesthesia. Even if you wait until a few days before your operation to quit smoking, it can still be beneficial.
Both TGCTs and surgery are unique experiences for each individual patient. Take some time to reflect on the nature of your past experiences and the requirements of the present moment. Also, if you have any questions, you should consult with your medical professionals.